Voice of the Diabetic
Voice of the Diabetic, published quarterly, is the
national magazine of the Diabetes Action Network of the National Federation of
the Blind. It is read by those
interested in all aspects of diabetes and blindness. We show diabetics that they have options
regardless of complications. We know
that positive attitudes are contagious.
Send news items, change of address notices, and other
magazine correspondence to: Voice of
the Diabetic, 1800 Johnson Street, Baltimore, Maryland 21230; phone: (410)
296-7760; e-mail: editor@diabetes.nfb.org
Find us on the World Wide Web at: www.nfb.org and click on
Publications.
Copyright 2006 Diabetes Action Network, National Federation
of the Blind. ISSN 1041-8490
Note: The information
and advice contained in Voice of the Diabetic are for educational
purposes, and are not intended to take the place of personal instruction
provided by your physician, or by your health care team. Discuss any changes in your treatment with
the appropriate health professionals.
Voice of the Diabetic
Eileen Rivera Ley
Director of Publishing
Elizabeth Lunt
Editor
Suzanne Shaffer
Art Director
Ed Bryant
Editor Emeritus
Gail Brashers-Krug
Director, Special Projects
Ann S. Williams
Contributing Editor
Tom Rivera Ley
Technology Writer
Cover Photo: Ed Bryant standing with an award plaque from
the Diabetes Action Network of the National Federation of the Blind. It reads:
“Award of Gratitude, Ed Bryant, Editor, Voice of the Diabetic, 21 Years of
Distinguished, Dedicated Leadership and Service to the Diabetes Action Network,
July 3, 2006, NFB Convention, Dallas, TX.”
Photograph courtesy of Vicki Palmer.
Voice of the Diabetic is published quarterly by the
Diabetes Action Network (DAN) of the National Federation of the Blind
(NFB). It is read by over 320,000
diabetics and their care-givers who know that with the right information and
support, no diabetic has to feel helpless or hopeless, regardless of medical
complications. Voice of the Diabetic is available in print, audio, and
e-mail versions and is the only magazine that focuses specifically on making
life with diabetic complications a lot less complicated.
Voice of the Diabetic: Educate, Empower, Inspire.
Voice of the Diabetic
1800 Johnson Street
Baltimore, MD 21230; phone: (410) 296-7760
www.nfb.org, click on publications
E-mail:
News items: editor@diabetes.nfb.org
Subscriptions & change of address:
subscribe@diabetes.nfb.org
To distribute free copies: distribute@diabetes.nfb.org
To advertise: ads@diabetes.nfb.org
Note: The information and advice contained in Voice of
the Diabetic are for educational purposes, and are not intended to take the
place of personal instruction provided by your physician or by your health care
team. Discuss any changes in your treatment with the appropriate health
professionals.
Copyright 2007 Diabetes Action Network, National Federation
of the Blind. ISSN 1041-8490
Inside This Issue
FEATURE:
Ed Bryant’s Vision Gave Us Our Voice
by Elizabeth Lunt
Diabetes and Heart Health
by Paula S. Yutzy, RN, BSPA, CDE
Don’t Ignore Erectile Dysfunction: It’s Treatable!
by Ed Bryant
Tackling Trans Fats
by Lynn Baillif, MS, RD, LN, CDE
If Blindness Comes
The Unofficial Guide to Low Vision Services
by Eileen Rivera Ley
Pumps Are Possible Even If You Can’t See Them
by Tom Rivera Ley
National Federation of the Blind Annual Convention
Letter to Our Leaders
Tribute to Ed Bryant
by Gary Wunder, President, NFB Missouri
Book Review: The Ultimate Guide to Accurate Carb Counting
Healthy Home Cooking
by Healthy Exchanges
Resource Roundup
Voice of the Diabetic Subscription Form
[PHOTO/CAPTION: Ed at his desk with the Voice. Photo
courtesy of Vicki Palmer]
[PHOTO/CAPTION: Betty Walker, Karen Mayry, Ed Bryant, Carol
Anderson and Delores Olson—Diabetes Action Network officers at the National
Federation of the Blind annual convention, Phoenix, Arizona, July 1987]
[PULL OUT QUOTES: “Life is not hopeless if you have diabetes
and blindness is not synonymous with inability. You can always find a
way.” — Ed Bryant
“His dedication and commitment are magnificent and
unflagging.”
— Dr. Marc Maurer, President, National Federation of the
Blind]
Ed Bryant’s Vision Gave Us Our Voice
by Elizabeth Lunt
After 21 years as volunteer editor of Voice of the Diabetic,
Ed Bryant has retired. It’s been a labor of love, and his project has grown
beyond his wildest dreams. In 1986, he sent out 600 copies of the brand-new
newsletter to rehabilitation agencies for distribution. When he retired in
2006, over 320,000 copies were going out each quarter to subscribers and
through volunteer distributors to health care facilities, community centers and
anywhere people need help managing their diabetes. “It just took off like a
rocket,” Ed says. The Voice has been soaring ever since—thanks to Ed’s
diligence, dedication and determination to get the word out to fellow
diabetics.
Ed, now 62, was diagnosed with diabetes when he was 14. He
had perfect vision until he was 30. He
was working as the national manager for a portrait photography business when he
realized that he was asking his secretary to take dictation on tasks he had
always done himself. By the time he made
it to an ophthalmologist he had almost no vision in one eye and the other was
going fast. The diagnosis: diabetic retinopathy. Although an operation restored
vision in one eye, he lost that one about a year later when a friend
accidentally poked him. All of a sudden, he was blind. “Of course it was a
shock” he recalls. After a pause he adds cheerfully: “The vision was gone, but
you have to keep moving in life.”
And move he did, right to a chapter meeting of the Columbia,
Missouri, National Federation of the Blind (NFB). Ed had grown up in Columbia
and returned from St. Louis when he lost his vision. Gary Wunder, president of
the Missouri NFB, recounted in a tribute speech in February, 2007 (see p. 17)
that although Ed’s career had been “snatched away,” Ed did not despair where
others would have. Gary recalls that Ed’s response to his sudden blindness was:
“There are coping skills out there and I’ll learn them.” Once Ed started
learning, he was unstoppable.
Ed was learning to manage his diabetes without vision, but
it “irked him to no end” that his mother had to come over and draw his week’s
supply of insulin. “It was ridiculous,” he says, a trace of impatience still in
his voice. Refusing to rely on his mother, Ed set about inventing an
insulin-dispensing device that he could use himself. The first version, which
his father and brother made for him in a woodshop, was “big and bulky,” but it
worked. Today, he uses the Count-a-Dose (available through the NFB) and says he
hasn’t found anything better.
Ed is the first to admit that he did not manage his diabetes
as well as he could have when he was young. He thinks better control might have
prevented some of his complications. But even if you are careful, he says,
diabetes can be “mean, nasty and insidious.” Ed firmly believes that people
need support to stay with their self-management, which is why he helped to get
the Diabetes Action Network (DAN) going and stayed with the Voice for so long.
They’re great projects for the NFB, he says, because “there are so many myths
in the public about the blindness part of it”—and because so many people lose
vision from diabetes.
The link between diabetes and vision loss is why Ed found so
much support from within the NFB. “His visionary and devoted leadership in
developing and editing the Voice of the Diabetic for years is a true
testament to his commitment and care for diabetics throughout the country,”
says Dr. Joanne Wilson, Executive Director of Affiliate Action at the NFB.
“Ed’s contribution to this important program of the Federation has been second
to none. He is one of our most valued leaders.”
Ed’s vision to help people with diabetes became the Voice.
In 1985, DAN was brand new, but Ed wanted to spread the word that “life is not
hopeless if you have diabetes, and blindness is not synonymous with inability.”
He suggested to DAN founder Karen Mayry that they start a newsletter. “Great,”
he remembers her saying. “You’re the editor.” And Voice of the Diabetic was
born.
Over the years Ed found inspiration in his work from the
many voices of his fellow diabetics. He took hundreds of calls and got hundreds
of letters. He remembers one woman in particular whose doctor told her that she
was going blind and that she would have to stay home and let her husband do
everything for her. She called Ed to tell him she knew better than that
doctor—from reading the Voice. That’s why he continued; so he could make
sure people living with diabetes would know they have options. The NFB is full
of people who prove this every day, he points out. “They get to where they want
to go,” he says. “You can always find a way.”
But Ed is realistic about the fight. With diabetes, he
knows, it can be long and hard. Another reader he recalls was from Argentina
and was only able to get dialysis when she visited the U.S. She eventually died
because the care in her own country was so poor. Ed was shocked that “she was literally dying
and could not get help or service.” Her fate renewed his determination to show
people that “here in the U.S. we have the resources,” he says. “People [can]
continue to live and enjoy life and take care of their diabetes.”
Many readers wrote and called Ed over the years to thank him
for his determination. And NFB and DAN executives sing his praises. “His
dedication and commitment are magnificent and unflagging,” states Dr. Marc
Maurer, president of the NFB. Tom Rivera Ley, a former DAN president, believes
that Ed’s work on the Voice will have a positive impact on people for
years to come. “You could only accomplish something that great with true
passion,” says Tom, “and Ed has passion for educating people with diabetes.”
Indeed, Ed volunteers at a summer camp for diabetic children
where he shows them how to inject their insulin and helps them learn
self-management. He also leads by example—his own diabetes is now in good
control. Three times a week he goes to a gym where he uses a variety of
exercise machines to keep fit. He monitors his diet carefully to keep his blood
sugar down. “I tell people to cheat in moderation,” Ed says with a chuckle,
“maybe one piece of pie instead of a chocolate cake.” For the most part, he
says, he’s doing very well.
So what’s next for Ed? He still writes for the Voice
and speaks to people who call for support. He spends time with Gail, his wife
of 24 years. He’s developed an interest in Civil War artifacts and just had a
large display case built for his home. Gary Wunder has invited Ed to help
enlarge the Missouri NFB. Many people want a piece of Ed’s time. One thing is
certain: We at the Voice have a tough act to follow. Thank you, Ed.
-------------------
Diabetes and Heart Health
by Paula S. Yutzy, RN, BSPA, CDE
Two out of three diabetics will die from a heart attack or
stroke, which means cardiovascular disease is more likely to kill you than any
other complication of diabetes. I was dismayed to learn that in a recent survey
of people with diabetes, many did not even identify cardiovascular disease as a
complication of diabetes. Yet your risk, just by having diabetes, is very high.
You need to know how to stay on top of this threat to your health.
Understanding your test results for what I call the “Three Musketeers” of
cardiovascular disease is a must for all diabetics and their caregivers. I
encourage you to find a way to be physically active and watch your diet as
well. These steps will help you reduce your risks from cardiovascular
disease.
The Three Musketeers
I call these three factors the “Three Musketeers” because
where you find one, you often find the others. You need to know them by their
descriptions and their numbers.
High Blood Sugar
You know that you need to pay attention to the amount of
glucose in your blood. The A1c test indicates your average blood sugar level
over the preceding two or three months. The name comes from the fact that the
component of blood to which sugar sticks, and can therefore be measured, is
called hemoglobin A1c. High blood sugar is generally regarded as an A1c of over
6.5 percent. The American Diabetes Association states the A1c goal for most
diabetics is under 7 percent and under 6 percent, if possible, without
significant hypoglycemia. Consult your health care provider for an individual
goal.
High Blood Pressure
High blood pressure causes stress on blood vessels and
contributes to damage that also leads to kidney failure and retinopathy. People with diabetes should be treated to
achieve a systolic blood pressure under 130 mmHg and a diastolic blood pressure
under 80 mmHg. Many people are on blood
pressure medicine, but are not reaching these targets. They should check their own blood pressure
with a sphygmomanometer (blood pressure machine) at different times of the
day. Automatic and talking
sphygmomanometers are available. If you
get one of your own, take it to the doctor’s visit with you and have its
accuracy verified by comparing the reading to what the doctor gets. Some people have what we refer to as “white
coat syndrome” meaning they have an increase in their blood pressure when it is
checked at the doctor’s office, but not at home. Keep a record of what you get at home and
show it to the doctor when you go to your visit.
High Cholesterol
The cholesterol test measures three types of fats, or
lipids, in your blood. You get high cholesterol in two ways: inherit it in your
genes if it’s in your family health history, and from the fat in meats, egg
yolks and dairy products that you eat.
The most dangerous type of blood fat is the
low-density-lipoprotein (LDL). This is often called “bad” cholesterol, because
it accumulates in blood vessels and clogs them. High-density-lipoprotein (HDL)
is the “good” kind of cholesterol that actually works to remove LDL from the
blood. Triglycerides are storage and energy fats, and are the most common fat
cells in your body. I frequently see diabetics who have high LDL and
triglycerides, and low HDL. This combination increases the risk of
cardiovascular disease, and is one you should strive to avoid.
Medications and Diet
There are several medications that can be used to lower the
LDL. Statins (e.g. Lipitor, Zocor) are frequently perscribed. Some people have bad reactions to these and
get muscle pain or cramping; if this happens to you, notify your doctor
immediately. You may need to change to another type of cholesterol
medication.
I am amazed by the many people with diabetes who take
expensive medication to lower their blood fats and at the same time eat lots of
fatty food which raise their blood fats! Every day in my practice I seem to run
into someone on cholesterol medicine who eats eggs, sausage and biscuits with
butter for breakfast and a burger and fries for lunch or dinner. If you do this
you are defeating the efforts of the medication to lower blood fats by choosing
to eat these foods.
I am also surprised that many people (frequently men) do not
recognize fatty food for what it is. I have devised a simple solution: Put the
food on a napkin and walk away. After five minutes, if you see a grease spot on
the napkin that food has too much fat and you should choose something else to
eat.
Exercise
You should discuss your exercise plans with your doctor
before you begin. If you have not had a stress test, ask if your doctor thinks
you should. The stress test allows the doctor to see how your heart is working
during exercise and can identify problems before they become serious.
Once exercise is considered safe, you now have to decide
what kind of exercise you can
do. You will begin slowly and gradually increase your
activity. You might go to a gym or get a recumbent bike or stepper for use at
home. Chair dancing is good for those who have mobility problems. Put on your
favorite music (can’t be a waltz!), sit in a chair without arms and dance with
your arms to the music. Move your legs to the beat if you like. You will be
surprised how much exercise this can be.
I remember a patient I had years ago. She was a tiny lady of
about 70. I described chair dancing to her and encouraged her to try it. When
she came back, she told me that she and her 93-year-old mother would sit in the
kitchen each morning and “chair dance to the oldies”! They laughed and had a
great time. I can just see them in the kitchen dancing and giggling
together. She reported that they had not
had such fun for a long time.
When you exercise you should warm up for five minutes by
stretching and easing into your activity. Bike, walk, swim (or whatever you
have chosen) slowly at first. Then increase your speed. An easy way of judging
your pace is this: If you can talk while you exercise you are going the right
speed. If you can sing “Happy Birthday”
you are not going fast enough, and if you can’t get words out, slow down! Some people like to count their pulse, but I
think this is easier.
Start exercise sessions with five minutes warm up. Then do
five minutes going faster. As you get in the exercise habit, increase the
middle exercise time slowly by two to three minutes every few days, until your
complete exercise period is at least 30 minutes. This should include cooling
down for five minutes by going slower to give your heart time to slow down too.
The Three Musketeers are also known as the ABC’s. Do you know your ABC’s? A is for A1c, B is
for Blood Pressure and C is for Cholesterol (see inside heart). The ABC’s are manageable, but I see many who
are not managing them as well as they could. A recent report said that only 37
percent of people with diabetes had an A1c under 7 percent, only 36 percent had
blood pressure under 130/80 and only 48 percent had total cholesterol under 200
mg/dL. Only 7.3 percent had all three in the control range!
You can improve this situation and decrease the effects of
cardiovascular disease. Until we do, two of every three people with diabetes
will die of a cardiovascular event. Although heart disease and stroke are the
leading causes of death in people with diabetes, they are preventable if you
have your ABC’s in control. Keep the Three Musketeers away!
Diabetes ABC’s
A1c under 6.5% or 7%
Blood Pressure under 130/80 mmHg.
Cholesterol, Total under 200 mg/dL
HDL over 40 mg/dL
for men and 50 mg/dL for women
LDL under 100
mg/dL, under 70 mg/dL is preferred
Triglycerides under
150 mg/dl
----------------------
[PHOTO/DESCRIPTION:
A couple embraces]
Don’t Ignore Erectile Dysfuntion: It’s Treatable!
by Ed Bryant
If you are a man with diabetes, we’ve got good news and bad
news about your sex life.
The bad news: Men with diabetes are three times more
likely to report having problems with sex than non-diabetic men. The most common sexual problem is Erectile
Dysfunction, or ED, sometimes called impotence.
Even worse, because ED is such a private issue, many men feel
embarrassed to discuss the problem with their doctor, or even their partner, so
the problem is never addressed.
The good news: ED is one of the most treatable
complications of diabetes. In fact, over
95 percent of cases can be successfully treated. With proven treatments available, diabetic
men with ED have options. It isn’t something you—or your partner—should have to
live with.
What ED Is—and What It Isn’t
ED means the repeated inability to achieve or sustain
an erection sufficient for sexual intercourse.
Although sexual vigor generally declines with age, a man who is healthy,
physically and emotionally, should be able to produce erections, and enjoy
sexual intercourse, regardless of his age. ED is not an inevitable part of
the aging process.
ED does not mean:
• An occasional
failure to achieve an erection. The
adage is true: It really does happen to everyone. All men experience occasional difficulties
with erection, usually related to fatigue, illness, alcohol or drug use, or stress. It isn’t fun, but it is totally normal.
• Diminished
interest in sex. ED occurs when a
man is interested in sex, but still cannot achieve or maintain an
erection. Many men with diabetes also
experience a decreased sex drive, often as a result of hormone imbalances or
depression. Decreased sex drive is quite
treatable, but it is treated differently from ED.
• Problems with
ejaculation. Such problems often
indicate a structural problem with the penis.
The most common treatment is surgical.
How Diabetes Causes ED
Human sexual response requires several different body
functions to work properly and together: nerves, blood vessels, hormones, and
psyche. Unfortunately, diabetes—and even
the treatment for diabetes—can affect many of these functions.
• Nerves: One of the most common complications of
diabetes is neuropathy, or nerve damage.
Erection is a function of the parasympathetic nervous system, but
orgasm and ejaculation are controlled by the sympathetic system. Neuropathy to either system can cause ED.
• Blood Vessels: Diabetes damages blood vessels, especially
the smallest blood vessels such as those in the penis. Diabetes can also cause heart disease and
other circulatory problems. Proper blood
flow is absolutely crucial to achieving erection. “Erection is a hydraulic phenomenon that
occurs involuntarily,” says Arturo Rolla, MD, of Harvard University School of
Medicine. “Nobody can will an erection!” Anything that limits or impairs
blood flow can interfere with the ability to achieve an erection, no matter how
strong one’s sexual desire.
• Hormones: Diabetes often causes kidney disease, and
kidney disease, in turn, can cause chemical changes in the type and amount of
hormones one’s body secretes, including the hormones involved in sexual
response.
• Psyche: Psychological issues can cause a diminished
sex drive, but they can also lead to ED even when sex drive is fine. ED can follow major life changes, stressful
events, relationship difficulties, or even the fear of ED itself. The
physiological changes associated with fear can themselves cause ED!
• Medications: About 25 percent of ED cases are caused by
drugs. Many medications, including
common medicines prescribed for diabetes and its complications, can cause ED. The most common offenders are blood pressure
drugs, antihistamines, antidepressants, tranquilizers, appetite suppressants,
and cimetidine (an ulcer drug). In
addition, over-the-counter medications, including certain eye drops and nose
drops, have been associated with ED.
That does not mean you should stop taking these medications! Rather, you should discuss them with your
doctor to determine whether a different dosage, an alternate medicine, or
additional treatments will resolve the ED.
Treatments for ED
ED is easily and successfully treated! If your sex drive is unaffected, but you
experience problems achieving or sustaining erection for a period of four to
five weeks, you may have ED. Talk to
your doctor immediately. Don’t
delay—erectile dysfunction doesn’t “just go away!” Additionally, ED could be a sign of a
serious, even life-threatening complication, such as congestive heart failure
or kidney disease. Ignoring your ED
because it’s embarrassing could jeopardize your health.
Most men seek treatment from their family doctor, who may or
may not be familiar with the range of treatment options. A specialist may be a better choice. Specialists include urologists and doctors
practicing at ED treatment centers.
A thorough physical exam and medical history, along with
certain laboratory tests, can help your doctor determine what is causing ED,
and then choose an appropriate treatment.
The most common treatments for ED fall into four categories:
medications, external mechanical devices, counseling, and surgery.
Medications:
Oral medicines: The
best known ED medications are the Big Three: Viagra (sildenafil citrate, made
by Pfizer, Inc.), Levitra (vardenafil HCl, made by Bayer and GlaxoSmithKline),
and Cialis (tadalafil, made by Eli Lilly). The three are chemically very
similar, and all have proven very effective.
Because they are effective, convenient, and relatively inexpensive
(about nine dollars per pill), these medicines have become the treatment of
choice for most men experiencing ED.
The main difference among the three is in how long they
last. Viagra is supposed to work for
between 30 minutes and four hours; Levitra for 30 minutes to two hours, and
Cialis for up to 36 hours. In addition,
Viagra is slightly less effective if taken with food; Viagra can also cause
temporary abnormalities of color vision.
In some cases, however, these drugs may be unsuitable for
patients with heart disease. If you are
considering one of these drugs and you have heart disease, as many diabetics
do, be sure to tell your doctor. In rare
cases, the pills may create “priapism,” a prolonged and painful erection
lasting six hours or more (although reversible with prompt medical attention).
Topical medicines:
When the problem is insufficient blood flow, vasodilators (such as
nitroglycerine ointment) can be applied to the penis to increase penile blood
flow and improve erections. The main side effect of nitroglycerine ointment is
that it may give the partner headaches. To prevent this, the man should use a
condom.
Penile Injection Medication: This is just what it
sounds like. Injected at home directly into the penis, the medication
alprostadil produces erection by relaxing certain muscles, increasing blood
flow into the penis and restricting outflow.
Although some sources report an 80 percent success rate, the therapy has
disadvantages, such as risks of infection, pain, and scarring—fibrosis—in the
penis, and it may also cause priapism. A
popular version of this medication is Upjohn Corporation’s Caverject. The MUSE
System, by VIVUS, involves the same medicine (a pellet of alprostadil) applied
with an eye-dropper-like applicator, directly into the urethra.
External Mechanical Devices:
This category of treatments includes external vacuum
therapies: devices that go around the penis and produce erections by increasing
the flow of blood in, while constricting the flow out. Such devices imitate a
natural erection, and do not interfere with orgasm. External vacuum therapy mechanisms are
approximately 95 percent successful in causing and sustaining an erection. All
are portable, and costs range between $200-$500, covered under most insurance
plans and Medicare Part B.
The vacuum constriction device consists of a vacuum
cylinder, various sizes of tension rings, and a vacuum pump, either
hand-operated or electric. The penis is placed in a cylinder to which a tension
ring is attached. Air is evacuated from the cylinder by means of the pump,
creating a vacuum, which produces the erection. The cylinder is removed,
leaving the tension ring at the base of the penis to maintain the erection.
Vacuum therapy devices have a few disadvantages. One must
interrupt foreplay to use them. You must use the correct-size tension ring and
remove it, to prevent penile bruising, after sustaining the erection for 30
minutes. Initial use may produce some soreness. Such devices may be unsuitable
for men with certain bleeding disorders.
In general, vacuum constriction devices are successful in management of
long-term ED.
“Rejoyn” is an inexpensive, nonprescription alternative to the
vacuum-actuated devices. Described by its manufacturer as a “support sleeve,”
it does not “cause” an erection, but rather supports the flaccid penis as if it
were erect (one wears it under a condom).
Counseling:
The great majority of ED cases in diabetic men have a
physical cause, such as neuropathy or circulatory problems. In some cases, however, the cause of ED is
psychological, including depression, guilt, or anxiety. With a thorough exam, the doctor should be
able to determine whether the ED is psychological or physical in nature. If the cause is psychological, your doctor
may refer you to a psychiatrist, psychologist, sex therapist, or marital
counselor. Do not view such a diagnosis as an insult. Most psychologically-based ED is easily and
successfully treated.
Surgery:
There are two kinds of surgery for ED: one involves
implantation of a penile prosthesis; the other attempts vascular
reconstruction. Expert opinion about
surgical implants has changed during recent years; today, surgery is no longer
so widely recommended. There are many less-invasive and less-expensive options,
and surgery should be considered only as a last resort.
The obvious risks are the same that accompany any surgery:
infection, pain, bleeding, and scarring.
If for some reason the prosthesis or parts become damaged or dislocated,
surgical removal may be necessary. With a general success rate of about 90
percent, any of the devices will restore erections, but they will not affect
sexual desire, ejaculation, or orgasm.
Prostheses: Many different types of penile prostheses are
available, in three categories: rods, inflatable prostheses, and self-contained
prostheses. Semi-rigid or malleable rods are the simplest and least expensive
of all. Their main disadvantage is that the penis remains constantly erect,
which may cause problems with concealment.
Inflatable prostheses are complex mechanical devices that
imitate the natural process of erection. Parts are inserted surgically into the
penis and scrotum, and activated by squeezing. When erection is no longer
desired, a valve on the pump is pressed, and the penis becomes flaccid. Self-contained single-unit prostheses are
similar to the inflatable types, but more compact. The entire device is
implanted into the penis. When erection is desired, the unit is activated by
either squeezing or bending, depending on which of the two types of
self-contained prostheses is used.
Vascular Reconstructive Surgery corrects defects in penile
blood vessels. The surgeon may reconstruct the arterial blood supply, or remove
veins when the cause is due to leakage. Less than five percent of men with ED
may benefit from vascular surgery.
Preventing ED
Like all diabetic complications, ED can occur even when you
have followed your doctor’s advice and carefully managed your diabetes. Also like all diabetes complications, ED is
less likely to occur with good blood sugar control. Poorly controlled diabetes and high cholesterol
increase the chances of vascular complications, which may lead to ED or other
circulatory problems. In addition, regular smoking and alcohol use can
contribute to ED.
You are not alone; others have faced these
difficulties. ED is treatable; you do
have options!
------------------------
Tackling Trans Fats
by Lynn Baillif, MS, RD, LN, CDE
You may have heard that trans fats are going to be banned in
certain states and cities as a public health measure. The following will help
you understand what these fats are and why you should minimize them in your
diet.
What are trans fats?
Trans fats are manufactured by adding hydrogen to liquid
vegetable oil. The result is a product
that is solid at room temperature. You
may have seen the terms “hydrogenated” or “partially hydrogenated” on food
labels. This means the product contains
trans fat.
How do trans fats affect my health?
We used to believe that trans fats were a heart-healthy
alternative to saturated (animal) fats. Years ago you may have been encouraged
to switch from stick butter to stick margarine.
However, a growing body of scientific evidence has shown that this is
untrue. Trans fats increase the risk of
heart disease by raising LDL (“bad”) cholesterol and lowering HDL (“good”)
cholesterol thus changing the ratio of HDL to LDL in the body. The Harvard School of Public Health estimates
that 30,000 premature cardiovascular deaths per year could be prevented by
replacing trans fats in the food supply with liquid vegetable oil (unsaturated
fat).
Why are trans fats used in food?
Trans fats were developed in the early 1900s as a low-cost
alternative to butter. They are
frequently used in packaged food products because of their extended shelf
life. This means the cookies, crackers
and chips in your cabinet will last longer without becoming rancid. If you look around your kitchen you may find
vegetable shortening (like Crisco) and stick margarine, which are both high in
trans fats. They have a longer shelf
life than butter, which contains no trans fat.
You can keep the can of vegetable shortening on your shelf for 1 year. Margarine will keep in your refrigerator for
six months compared to one to three months for butter.
What foods have trans fats?
Although stick margarine is high in trans fat, its use
accounts for only one-third of the trans fat intake in the American diet. The vast majority of the trans fat we eat
comes from fast food, commercial baked goods and other prepared foods. For example, a donut has approximately three
grams of trans fat and a large order of french fries has approximately seven
grams of trans fat. So you can see how
easy it is for you to consume the eight grams of trans fat each day that is the
average intake for Americans.
How do I know if there are trans fats in foods I buy at
the grocery store?
As of January 1, 2006, the Food and Drug Administration has
required manufacturers to include trans fat on the nutrition facts label. You will find it listed underneath total
fat. Products can be labeled as zero grams
of trans fat if they contain less than .5 grams trans fat per serving. So, you may see partially hydrogenated oil on
the ingredient list even though the label states zero grams of trans fat. In such a case, be careful. If you eat a large amount of the product your
trans fat intake can add up.
Can I continue to eat trans fats?
According to the American Diabetes Association 2007
Nutrition Recommendations and Interventions for Diabetes, you should minimize
your consumption of trans fats.
Although there are trace amounts of trans fats which occur naturally in
beef and dairy products, there is no need to avoid these foods since the
amounts they contain are
negligible.
Should I use margarine or butter?
The answer depends on how often you use it and for what
purpose. If you rarely use butter or
margarine, having whichever you prefer is fine.
Otherwise, it is a good idea to explore this question. Light butter has less unhealthy animal fat
than stick butter while tub margarine has less trans fat than stick
margarine. As a spread, tub margarine
with water or liquid vegetable oil as the first listed ingredient or labeled as
“no trans fat” is a wise choice. If your
goal is to prevent food from sticking to a pan while cooking or baking you can
use a vegetable oil cooking spray or nonstick pans so you do not need to use
butter or margarine. When flavoring
vegetables, potatoes, popcorn or other foods, try a butter-flavored powder like
Butter Buds. It contains no fat. If you prefer the flavor of butter in your
homemade baked goods, try using half light butter and half regular butter for
the fat in the recipe. You can also
decrease the fat in the recipe by one-third without changing the texture of the
finished product. Another option when
baking is to use a fruit puree (applesauce, mashed banana or baby food prunes)
to replace up to three-quarters of the fat in the recipe. But remember this will increase the
carbohydrate content of the finished product.
What else can I do to avoid trans fats?
When dining out, ask what type of fat is used in preparing
your food. Some establishments are
making an effort to reduce their use of trans fats. For example, McDonald’s now uses an oil for
cooking french fries that contains no trans fats. Marriott International has undertaken a
company wide program to rid its hotel restaurants of trans fats without
compromising food quality. However, it
is important to remember that even if fried foods and baked goods are made
without trans fats, they are still often high in total fat content. We will talk about how to manage your overall
fat intake in a future column.
-----------------
IF BLINDNESS COMES…
Welcome to the Voice’s newest feature. If Blindness
Comes is a special pull-out section on diabetes and vision loss, printed in a
larger font. If you know someone living
with diabetes and vision loss, please pull this section out and share it.
This issue of If Blindness Comes...is sponsored by a
generous educational grant from GlaxoSmithKline.
[PHOTO/Description: A man uses a magnifier to read a
notice.]
The Unofficial Guide to Low Vision Services
by Eileen Rivera Ley
Many people with diabetes experience some vision loss, and
getting help can be confusing. For some,
the loss comes from retinopathy; for others the culprit may be macular
degeneration or glaucoma. While causes
and severity vary, the solution may be the same—low vision services. There are excellent resources for people who
are neither fully blind nor fully sighted, and I hope the following will answer
your questions about them.
Q: What exactly is low vision?
A: You have low vision if your best corrected visual acuity
is 20/70 or less. You are not “legally blind” until visual acuity drops to
20/200 or less. (Incidentally, someone
who has no vision is also “legally blind.”)
But those numbers don’t tell the whole story. Visual field loss and blind spots have
profound effects on vision. For example,
a blind spot obscuring your central field can make reading regular print nearly
impossible, even if your visual acuity is 20/20. Specially trained low-vision optometrists will
evaluate functional vision beyond visual acuity.
Q: Who uses low-vision services?
A: Anyone with deteriorating or permanently damaged vision.
The typical patient is a senior with macular degeneration—the main cause of
blindness. Since diabetes is the second-leading cause of blindness, however,
low vision practitioners see many people with diabetes. They therefore know that diabetes
self-management goals like measuring insulin and reading your meter are as
important as reading your bills, price tags, or computer.
Q: Who provides low-vision services?
A: Optometrists. They spend four years learning about the
eye, lenses and visual function, and some get extra training in low-vision
services; they will know the most about prescribing specialized low-vision
lenses and devices. Ophthalmologists are medical doctors who specialize in the
health of the eye; they examine all parts of your eyes, prescribe medications,
and do surgery. Many can test you for lenses and give you a prescription for
glasses, but optometrists are the optical experts. You need to see both
specialists: your optometrist to help you cope with your low vision and your
ophthalmologist for your eye disease.
Q: What are the goals of low-vision services?
A: You and your practitioner will determine these together.
What is most important to you? Checking a price tag in the store, studying a
road map, reading the nutrition label, sorting mail, looking up a phone number,
and viewing a theatrical performance are the types of things you might ask about.
Finding the right low-vision tools will take time. Usually, the specialist will
explore the optical alternatives first by assessing reading, writing, distance
viewing, mobility, and lighting options.
Q: What is the Best Way to Work with My Low-Vision
Specialist?
A: Ask questions, and make sure your specialist knows you
want to hear all the options. Sometimes
low vision specialists feel pressured to recommend only visual solutions
because they know how much you want to see.
Ask them to recommend anything they think will help you function best,
whether their recommendation makes use of your eyes, your ears, or your sense
of touch.
Q: How Difficult is Reading with Magnification?
A: You may need a variety of magnification devices to
accomplish your goals, as they tend to be task-specific. In prescribing a reading device, the
practitioner must balance the tradeoffs among magnification levels,
fields-of-view, and working distance. The stronger magnifiers require you to be
one inch from the lens, a less-than-comfortable position for sustained reading.
Powerful magnifiers also tend to have a small field-of-view and can enlarge
only a few characters at a time. These constraints may reduce reading speed.
A trained low vision specialist will systematically evaluate
your reading by measuring speed and accuracy at different print sizes and
documenting the print size of the last good reading. Then the specialist will select a
magnification system that converts actual print size to the size you can see
most clearly.
Endurance is perhaps the most important factor in
determining an optimal reading system. Rarely will a low-vision device enable
you to curl up comfortably with a book and read for hours. If the only way you
can read unaided is by holding a book up to your nose, chances are that the
reading system will become more cumbersome and inadequate as time progresses.
This is true even when your visual condition is reported as stable.
Q: What are Low Vision Recommendations?
A: Low vision
optometrists will provide you with a shopping list of choices, usually ranging
in price and effectiveness, that they think will help you the most with your
pre-determined goals. They should explain the pros and cons of specific systems
and introduce non-visual options as needed. If you don’t understand, ask
questions. If information is missing, ask questions. For example, you may
be offered lighting advice for your home, but will need to ask about a plan for
times when lighting is not in your control. The low vision optometrist should
be realistic about the ease of use, practicality, and comfort level of a
prescribed device.
If you have progressive retinopathy you may find low-vision
services frustrating, because prescribed devices may quickly become ineffective
as your condition gets worse. In such cases, you should evaluate whether your
time and resources might be better spent in refining non-visual skills such as
typing, Braille, and cane travel.
Q: How Can I Be a Wise Consumer of Low Vision Services?
A: Think about your needs, and insist on getting help. The
fact that vision enhancement is technically feasible doesn’t automatically make
it a good idea. Ask yourself if a low-vision optical system will meet your
needs at home and at work. Consider the ergonomics (working conditions) of a
device. Will using the device give you a headache, back pain, or eye strain?
Understand the field-of-view limitations and necessary lighting conditions.
Consider portability. Will you need training to use the device? Ask about the
usefulness of the device as vision fluctuates, a common complaint of people
with diabetes. Selecting low-vision devices is highly individual. During your comprehensive low vision
evaluation, ask your provider to lend you a device to test at home (this may
not always be feasible).
Also consider economics. For example, telescopic lenses are
a big-ticket low-vision device and they definitely work. Many people with low
vision keep a telescope handy for occasional spotting tasks, but they are
expensive. Is the investment warranted?
How much benefit will you gain from the device compared to the
cost? Are there community resources that
might assist with the cost? Sometimes
state vocational rehabilitation services and groups like the Lions Clubs can
help.
Keep in mind that visual goals change as technology changes,
so plan to return to the low-vision center every few years to see what’s new.
You may be pleasantly surprised, as I was when I first saw the hand-held CCTV
(electronic magnification) products.
Part of being a satisfied consumer is to understand your own
needs and limitations, as well as the available options. Keep traditional
low-vision solutions in perspective; many low-vision people never learn to make
the most of their other senses, so they cling to their visual solutions,
reducing overall efficiency. If you are significantly visually impaired or are
legally blind, consider non-visual techniques for reading, such as audio books.
Even if non-visual strategies are your second choice today, familiarity with them
will serve as an excellent resource in later years. Having a full range of
alternative techniques is always your best bet.
You can learn more about your options and meet others with
diabetes and low vision by contacting the Affiliate Action Office of the
National Federation of the Blind, at (410) 659-9314.
The NFB Diabetes Action Network (NFB DAN) will hold its
annual meeting July 2, 2007, in Atlanta, Georgia. The NFB DAN, which publishes Voice of the
Diabetic, is a peer support and action group for diabetics experiencing
complications of their illness. The
annual meeting will be held in conjunction with the annual convention of the
National Federation of the Blind.
The NFB DAN meeting promises to be exciting and
informative. This year’s theme is “Lose
to Gain.” “We all know that we should
lose weight, but most people don’t know that taking off just a few pounds can
really improve your diabetes management,” noted NFB DAN president Lois
Williams. Glenda Somerville, a
Certified Diabetes Educator, will be the featured speaker, providing practical
advice about losing weight and managing diabetes.
In addition, the Voice of the Diabetic team will
discuss recent changes in the magazine and their plans for even more
improvement over the coming year. Voice
Director of Publishing Eileen Rivera Ley encourages all readers to
attend: “We love hearing from our
readers! Help us make the Voice
great. There’s lots of fun to be
had. It’s wonderful to see other
diabetics who are thriving, despite complications, with the support and
encouragement of fellow travelers. I
hope to meet you there!”
The NFB DAN Meeting will be held in Atlanta, Georgia, on
Monday, July 2, 2007, at the Marriott Marquis Hotel, 265 Peachtree Center
Avenue. For registration information,
contact the NFB DAN at (410) 659-9314 or on the web at www.nfb.org/voice. For reservations at the Marriott Marquis,
call (888) 218-5399.
Optical Devices
Reading glasses
Magnifiers
Telescopes
Binoculars
Electronic Magnifiers (CCTVs)
Computer magnification software
Non-Optical Devices
Bold line paper
Felt tip markers
Large-print books
Jumbo-print playing cards
Adapted board games
Large checkbook and registers
Non-Visual Devices
Talking and Braille watches
Talking blood glucose meters
Talking thermometers
Books on Tape
Self threading needles
Talking calculators and clocks
Computer screen readers
Long white canes
------------------------------
Pumps Are Possible Even If You Can’t See Them
by Tom Rivera Ley
Have new designs made insulin pumps more accessible to those
of us who cannot depend on our sight to read their small screens? The answer is
a resounding no. Should blind and visually impaired diabetics avoid using
pumps? Again: a resounding no.
The number of pump users has grown from around 10,000 in1990
to an estimated 250,000 users worldwide in 2006. Competition in this exploding
market has been good for consumers, sparking advances in pump technology and
ease of use. Some are even kid friendly. Kid friendly, you ask? Yes. Many school-age
children with type 1 diabetes now use insulin pumps by themselves. In an effort
to target this life-long market, manufacturers have focused on smaller size and
hip new colors and patterns. And pediatric endocrinologists are now prescribing
pumps for parents to use with their diabetic children who are as young as two
years old.
New features include:
• Lots of stylish
colors
• Smaller size
• Wizards to assist
in calculating the mealtime bolus
• Wizards to assist
in calculating a high blood sugar correction bolus
• Added safety
features, such as waterproofing
• Ease-of-use
enhancements, such as menu-driven programming
But Voice of the Diabetic readers may recall numerous
articles over the past decade outlining the inaccessible features of these
devices. Unfortunately, even with all of these useful (or cosmetic) advances,
pump manufacturers continue to ignore our voices pleading for an accessible
pump.
Almost all pumps on the market today offer a way to
administer a mealtime or correction bolus accurately without seeing the pump
screen, but this is no advancement from a decade ago, as insulin pumps in the
1990’s also had this feature. What’s worse, nearly all of the new advances in
convenience and safety, such as the bolus wizards, variable bolus deliveries
and more powerful basal features are completely inaccessible without the
ability to read the pump screen.
I am greatly disappointed as each new insulin pump comes to
market without addressing the accessibility issue. But the good news is that
the new models are no less accessible than the old. If you want to take
advantage of the unique benefits of an insulin pump over a multiple daily
injection (MDI) regimen, you can, with very little sighted help at first.
I am totally blind and have used an insulin pump
successfully for nearly a decade. It offers greater control in preventing low
blood sugar and added convenience when I’m on the go. Also, the pump is the
only way I can match my basal insulin delivery to the peaks and valleys caused
by the Prednisone I take daily. I do need sighted assistance to set the
time/date, preferences and basal profiles.
But once I have set those, I manage daily operation without
assistance. This includes bolus
administration, changing the batteries, and replacing insulin and infusion
sets. I am very happy with my pump and plan to continue using it. I must assure
you, however, that as soon as a manufacturer decides to make a truly accessible
insulin pump, I will immediately change to that pump and will announce it boldly
and loudly to all diabetics I know.
I am confident that sooner or later, and hopefully sooner, a
company will produce an accessible insulin pump. It is the right thing to do,
and it is the smart business thing to do as well. The National Eye Institute
(NEI) states that 40 to 45 percent of diagnosed diabetics have some level of
diabetic retinopathy. Furthermore, diabetics are living longer and healthier
lives than ever. So even if diabetic retinopathy were not an issue, glaucoma,
cataracts and age-related macular degeneration will be. And the fact is that
nearly all pump users would benefit in some way from pumps that you don’t have
to see to use. Turning on a light is not always convenient or desired, and poor
lighting abounds. Pulling out your pump is not always physically or socially
convenient. Many diabetics experience fluctuating vision: fine one day,
relatively poor the next. Most pump users encounter one or more of these
circumstances routinely, and all would benefit from an accessible pump.
So, which company will finally listen to our voices and make
the smart business decision? Who will create a fully accessible pump? Only time
will tell, but the first producer stands to reap rich harvests of loyal new
customers, good will, positive press, and competitive advantage. Until then, I
will make do with my semi-accessible model, which does allow for good
self-management while I wait!
------------------------
National Federation of the Blind Annual Convention
The NFB Diabetes Action Network (NFB DAN) will hold its
annual meeting July 2, 2007, in Atlanta, Georgia. The NFB DAN, which publishes Voice of the
Diabetic, is a peer support and action group for diabetics experiencing
complications of their illness. The
annual meeting will be held in conjunction with the annual convention of the
National Federation of the Blind.
The NFB DAN meeting promises to be exciting and
informative. This year’s theme is “Lose
to Gain.” “We all know that we should
lose weight, but most people don’t know that taking off just a few pounds can
really improve your diabetes management,” noted NFB DAN president Lois
Williams. Glenda Somerville, a
Certified Diabetes Educator, will be the featured speaker, providing practical
advice about losing weight and managing diabetes.
In addition, the Voice of the Diabetic team will discuss
recent changes in the magazine and their plans for even more improvement over
the coming year. Voice Director of
Publishing Eileen Rivera Ley encourages all readers to attend: “We love hearing from our readers! Help us make the Voice great. There’s lots of fun to be had. It’s wonderful to see other diabetics who are
thriving, despite complications, with the support and encouragement of fellow
travelers. I hope to meet you there!”
The NFB DAN Meeting will be held in Atlanta, Georgia, on
Monday, July 2, 2007, at the Marriott Marquis Hotel, 265 Peachtree Center
Avenue. For registration information,
contact the NFB DAN at (410) 659-9314 or on the web at www.nfb.org/voice. For reservations at the Marriott Marquis,
call (888) 218-5399.
Will you need dialysis in Atlanta?
If so, have your home
dialysis unit contact a unit in Atlanta well in advance. You can work with your
social worker or unit coordinator for reservations. Information on dialysis
centers in every state is available at 1-866-889-6019 or at
www.dialysisfinder.com. Remember, you must have a transient patient packet and
completed physician's statement when you arrive for dialysis.
Diabetes Action Network Annual Meeting
Featuring:
• “Lose to Gain”
theme
• Information about
the latest technologies for diabetes management
• An extensive
exhibit hall
• Special recognition
for anyone whose A1c is less than seven for our
“Less Than Seven by 7/07” initiative
• A chance to connect
with other diabetics experiencing complications
• The annual election
of NFB DAN officers
NFB Convention is Really a Reunion
by Anil Lewis
As I was growing up, the third Sunday in August was always
rejuvenating because my extended family from around the country came to my
grandmother's little house in Woodville, Georgia, for our family reunion.
Fortunately for me I
have another extended family, and from June 30 through July 6, 2007,
approximately 3,000 of my sisters, brothers, aunts, uncles, nieces, nephews,
and cousins will be attending the largest family reunion of blind people in the
country. Most refer to this week of fun and fellowship as the annual convention
of the National Federation of the Blind!
This year Tour Day falls on Independence Day, Wednesday,
July 4, and there is so much to do in Atlanta! The Marriott Marquis is only a
few blocks from Centennial Park, which is sure to have an outstanding
Independence Day celebration. Also the Georgia Aquarium and the new Coca-Cola Museum
are in walking distance of the hotel. Conventioneers will be a short MARTA
train ride away from Underground Atlanta or Lenox Square, which, in addition to
being a wonderful shopping experience, will provide an entertaining atmosphere
on the holiday. The Georgia affiliate is arranging transportation for those who
would like to visit the Martin Luther King Jr. historic site or the Carter
Center Library.
Even as we make plans to have a grand old time, we must
remember the real reason for the reunion.
A full agenda of presentations will cover an array of issues that are
important to the nation's blind. Our national-office staff will no doubt have a
mix of training sessions on advocacy, self-determination, and strategies for
collective action that will educate and empower. The convention provides a real
opportunity to remind ourselves and others about the true potential of the
blind. I can't wait to see y'all in
Atlanta.
Join us in Atlanta!
June 30 - July 6
To register, visit www.nfb.org or call the NFB at
410-659-9314.
The 2007 convention of the National Federation of the Blind
will take place in Atlanta, Georgia, at the Marriott Marquis Hotel at 265
Peachtree Center Avenue, Atlanta, Georgia 30303. For room reservations call
(404) 521-0000 or 888-218-5399.
The Marriott has several excellent restaurants and features
indoor and outdoor pools, solarium, health club, whirlpool, and sauna.
Convention room rates are: singles/doubles, $61; triples/quads, $66 per night,
plus a 15 percent sales tax. The hotel is accepting
reservations now. A $60-per-room deposit is required. Fifty
percent of the deposit will be refunded if you cancel your reservation before
June 1, 2007. The other 50 percent is not refundable.
Rooms will be available on a first-come, first-served basis
but the special rates will not be available after June 1, 2007.
-------------------
Letter to Our Leaders
Drs. Maurer & Wilson:
I am a current member of the National Federation of the
Blind here in the wonderful state of Nebraska. I was recently diagnosed with
type 2 diabetes, and began treatment including medication, diet changes and
exercise. Upon discovering that checking my blood sugar would be a regular
thing, I joined the Diabetes Action Network (DAN) and the diabetes talk list on
NFBnet.
Let me tell you what I have gained in just a short time of
involvement with this wonderful group of people:
1. Information:
Carb counting was new territory for me; planning balanced
meals a new frontier. I knew I needed a
map (of sorts) for navigating this new territory. The people on the diabetes list referred me
to articles from Voice of the Diabetic that had the very information I
needed for planning meals, among other things.
I found articles on finger-sticking techniques (for doing the blood
sugar checks on a glucometer) and even dealing with stress. There is a wealth of information to be found
in Voice of the Diabetic, and I’ve only scratched the surface.
2. Support:
I admit, despite knowing that diabetes is in my family, I
took the diagnosis very hard. Upon
joining the diabetes talk list, I found immediately a network of people who
(because of their love, encouragement, camaraderie, understanding and so much
else) is more aptly described as a family...much like the Federation as a
whole. In fact, I’ll go so far as to say
that the DAN is a family within the Federation family. I say this because they
have shown love and support and affirmed me at times I felt afraid (especially
of the finger sticking), and reminded me that it’s okay to be afraid, but it’s
what you do with that fear—how you handle that fear—that matters. I…wish that
I… [could] meet these people in person and give each and every one of them the
biggest bear hug my six foot frame would allow.
Thank you for taking the time to read this. I felt it
important for you to know just what the Diabetes Action Network and Voice of
the Diabetic means to someone like me.
Sincerely,
Alan Wheeler
Editor’s notes: Dr.
Marc Maurer is President of the National Federation of the Blind; Dr. Joanne
Wilson is Executive Director for Affiliate Action. To join the National
Federation of the Blind/Diabetes Action Network chat list via the World Wide
Web, visit http://www.nfbnet.org/mailman/listinfo/diabetes-talk or, via email,
send a message with subject or body ‘help’ to diabetes-talk-request@nfbnet.org.
You can reach the person managing the list at diabetes-talk-owner@nfbnet.org.
-----------------
Tribute to Ed Bryant
February 10, 2007
by Gary Wunder, President NFB Missouri
People come to blindness in different ways—some by birth,
some by accident, some by age, but many by medical conditions we can’t yet
prevent. Not only do people come to
blindness differently, but they react to it differently as well. Some view it as a tragedy which soon becomes
their reason to have someone else do all of the work which should be
theirs. Others come to think of
blindness as a disadvantage but one they can use to their benefit: “I’m blind;
I can stay home; this misfortune, as bad as it is, has given me a life-long
income, so I’ll enjoy the internet, my music, I’ll become an expert on
Ebay.” Again, the message is the
same: “I’ll let someone else take care
of me.”
Ed, as much as anyone, had these options. Not only did blindness take his vision, but
it took his livelihood. I know blind
people who enjoy photography, but I don’t know any blind photographers, and
this is the profession blindness snatched away from our friend.
So, how did he react? He looked at blindness and said:
“There are coping skills out there and I’ll learn them.” He looked at the source of his blindness,
diabetes, and again he said: “There are coping skills out there and I’ll learn
them.” What he did next is the reason
we’re here today. He didn’t stop with
learning and inventing skills—he decided to share them. Share them with his family and friends? No,
not Ed—our friend decided if he had skills to share, he’d share them with the
world, and what better way to do that than through the written word?
In his quest for a partner to help in this sharing, Ed found
an ally in the National Federation of the Blind, and together they started a
publication which has been the voice of hope for many who feared their lives
were over. Through Ed’s voice, and the
voices of hundreds of his fellow travelers, people have learned that blindness
and diabetes don’t have to mean living in a nursing home or forever depending
on someone else to draw and administer medication, fix meals, do laundry, and
carry on all the life activities many of us take for granted.
To the man who could have retired 20 years ago and
considered himself deserving of pity and care, we today come to say “Thank you
for charting a different course.” To the
man who has taught so many to use a needle, and who has needled so many of us,
diabetics or not, to do more than we would otherwise do, we meet here today to
tell you how much you mean to all of us.
And now that much of your work is over in starting and
running the publication so aptly named The Voice, I come to recruit you
for yet another Federation task—help us grow the NFB of Missouri in the same
way you have helped to grow the Diabetes Action Network. You deserve the right to retire but we hope
that you'll pass on that, as you did once before, and start another phase of
changing what it means to be blind.
Members of the NFB in Columbia, Missouri, gave a party to
honor Ed Bryant on February 10, 2007. Gary Wunder, president of the NFB of
Missouri, delivered this speech at the event.
Book Review: The Ultimate Guide to Accurate Carb Counting
If you administer mealtime insulin, being off by 10 or 15
carbs can make a difference. But carb
calculations can be complicated. Does
“sugar free” mean “no carbs”? How does
fiber content affect carb count? What is
the glycemic index, anyway? And how does
that exchange list work?
Gary Scheiner, type 1 diabetic and certified diabetes
educator, answers these questions and many others in his new book, The
Ultimate Guide to Accurate Carb Counting. Scheiner writes with a witty and
engaging style that makes reading a pleasure as he takes an in-depth look at
all aspects and theories behind carb counting. He explains how to understand
food labels, make estimates for unlabelled foods, and cope with eating out.
Four “Tool Kits” entitled: Exchange Lists, Carbohydrate Factors, Glycemic Index
Values and Carb Listings (for 2,500 foods) round out the excellent information
in this very useful book. Scheiner makes a sometimes-complicated subject as
simple as pie (apple, small slice = 46 carbs).
-------------------------
Healthy Home Cooking
by Healthy Exchanges
Hi! Thanks for
joining us in the kitchen again, where the cooking is easy and the food is both
healthy and tasty! Enjoy!
Are you trying to reduce your sodium intake? Good for you; you’re doing the right thing.
Lowering your sodium will help drop your blood pressure and benefit your
cardiovascular system. On average, you should consume less than 2,300mg of
sodium per day. Foods with 200mg of
sodium or more per serving are considered high-sodium, foods with less than
140mg per serving are low-sodium.
Here are some foods that you may not have thought of as
high-sodium foods.
Deli meat: 1oz – 396mg or more
Packaged pudding mix: 1/2 cup serving made with milk – 470mg
Ketchup: 1 tablespoon – 167mg
Soy sauce: 1 tablespoon – 1029mg
Canned soup: 1 cup – 1000mg
Chili: 1 cup – 1200mg
TV Dinner: 1150mg
Pizza: 1 slice – 900mg
To help maintain a low salt intake try some of the following
tips:
Don’t use salt at the table, and reduce the salt used in
food preparation. Try 1/2 teaspoon when
recipes call for 1 teaspoon. Many cakes
and desserts can be prepared without adding salt. Use herbs and spices for flavoring meats and
vegetables instead of salt. If you prefer a pre-mixed spice blend make sure it
does not include salt. Avoid salty foods
such as processed meats (deli), pickles, soy sauce, salted nuts, chips and
other snack foods.
Three more salt-reducing quick tips to keep in mind in the
kitchen: Don’t add salt to dried beans before you cook them as it will prevent
them from getting soft. Don’t salt meat
or a roast as you’re browning it. Salt
draws out moisture so it will stay more moist if you leave salt out of the
process. And finally: If you mistakenly
add too much salt to a dish you’re preparing, drop in a potato and continue
cooking. The potato will help to absorb
the extra salt.
Now for our Recipe Low-Salt Makeovers:
MP of IA sent this recipe to be revised from a 50’s recipe
into a recipe of today, using the great food items that are now available in
the grocery store.
CONGEALED AMBROSIA SALAD
1 (4-serving) package JELL-O sugar-free orange gelatin
1/2 cup Splenda Granular
1 cup boiling water
1 (8-oz) can crushed pineapple, packed in fruit juice,
undrained
1/2 cup no-fat sour cream
1/2 teaspoon coconut extract
1 (11-oz) can mandarin oranges, rinsed and drained
1 (8-oz) can pineapple tidbits, packed in fruit juice,
drained
1/4 cup flaked coconut
1/4 cup chopped pecans
In a large bowl, combine dry gelatin, Splenda, and boiling
water. Mix well to dissolve
gelatin. Refrigerate for 15
minutes. Stir in undrained crushed
pineapple, sour cream, and coconut extract.
Add mandarin oranges, pineapple tidbits, coconut, and pecans. Mix well to combine. Spread mixture into an 8-by-8-inch dish. Refrigerate until firm, about 3 hours. Cut into 8 servings.
Serves 8 – Each serving equals: 101 Calories, 3g Fat, 1g
Protein, 15g Carb, 60mg Sodium, 29mg Calcium, 1g FiberDiabetic Exchanges: 1
Fruit, 1 Fat
Carb Choices: 1
MS of OH, sent in a great way to serve chicken.
CHICKEN SALAD ORIENTAL
1/3 cup Land O Lakes no-fat sour cream
1 (8-oz) can pineapple tidbits, packed in fruit juice,
drained and 2 tablespoons liquid reserved
1/2 teaspoon ground ginger
2 cups diced cooked chicken breast
1 (8-oz) can sliced water chestnuts, rinsed, drained and
coarsely chopped
2 tablespoons sliced green onion
4 lettuce leaves
1/4 cup slivered almonds
In a large bowl, combine sour cream, reserved pineapple
juice, and ginger. Add chicken,
pineapple, water chestnuts, and onion.
Mix well to combine. Cover and
refrigerate for at least 15 minutes. For
each serving, place 1 lettuce leaf on a plate, spoon about 1 cup chicken
mixture on lettuce, and sprinkle 1 tablespoon almonds over top. HINT:
If you don’t have leftovers, purchase a chunk of cooked chicken breast
from your local deli.
Serves 4 – Each serving equals: 242 Calories, 6g Fat, 25g
Protein, 22g Carb, 89mg Sodium, 68mg Calcium, 4g Fiber Diabetic Exchanges: 3
Meat, 1/2 Fruit, 1/2 Fat, 1/2 Vegetable
Carb Choices: 1 1/2
We hope you enjoyed our time together in the kitchen. Remember, if you’d like us to revise one of
your family favorites so it’s healthier, send your request to: Healthy Exchanges, PO Box 80, DeWitt, IA
52742. Also, be sure to visit our Web
site at www.healthyexchanges.com for more “common folk” healthy recipes to
try. Until next time…
--------------------
Resource Roundup
Note: Resources mentioned below do not imply endorsement by
the Diabetes Action Network of the NFB.
The National Kidney Foundation can assist diabetics
The National Kidney Foundation (NKF) publishes a variety of
informational materials about diabetes and chronic kidney disease. The NKF also provides resources and support
for those undergoing dialysis or kidney transplants. The NKF seeks to prevent
kidney and urinary tract diseases, improve the health and well-being of
individuals and families affected by these diseases, and increase the availability
of all organs for transplantation. For more information, call the NKF at (800)
622-9010, or go to www.kidney.org.
Bilingual Talking Glucose Meter
The Prodigy Autocode delivers clear, audible readings in
both English and Spanish, is affordable and fits in your pocket. No coding is
necessary and you’ll have results in six seconds. You may be eligible for a
free meter! Call toll free: (866) 540-4815.
Talking microwave
Bravo to Hamilton Beach for their Talking Microwave (Product
# 87106 and #87108). This machine is available at retail stores such as Walmart
and Best Buy for under $100, a remarkable achievement considering that most of
its predecessor talking microwaves averaged well over $300.
Amazing new reading device that talks
The new Kurzweil–National Federation of the Blind reader is
a portable hand-held device that talks! Simply position over documents,
nutritional labels, book pages, recipes, etc. and the tool will read the
contents aloud. The retail price of this revolutionary new product is $3,495
but for a limited time the NFB is offering a $200 discount. A new feature
enables the reader to identify paper money. For more information or to order,
call (877) 708-1724 or to go www.nfb.org.
Accessible Glucose Meter
The new Advocate is compact, it talks, and its display is
clear and bright. The meter uses capillary action, touchable test strips and
tests across a 20mg/di range, with a tiny blood sample. Contact the retailer:
Diabetic Support Program, 3381 Fairlane Farms Road, Wellington, FL 33414;
telephone: (800) 990-9826 www.prescriptionsplus.com.
A wealth of information at one site
DiabetesXChange.org is a new online clearinghouse for
promising initiatives in diabetes care, prevention and management in the U.S.
Whether it’s a small community-based initiative, university-sponsored effort,
corporate wellness program or large government project, visit the Web site to
learn more.
Help for Diabetic Amputees
The mission of The Amputee Coalition of America (ACA) is to
reach out to people with limb loss and to empower them through education,
support and advocacy. This includes access to, and delivery of, information,
quality care, appropriate devices, reimbursement, and the services required to
lead fulfilling lives. The ACA publishes InMotion,
a magazine that addresses topics of interest to amputees and
their families. The ACA toll-free
hotline provides answers and resources for people who have experienced the loss
of a limb. In addition, the organization
develops and distributes booklets, video tapes,
and fact sheets to enhance the knowledge and coping skills
of people affected by amputation. To contact the ACA, call (888) AMP-KNOW
(888-267-5669), or check out the Web site at www.amputee-coalition.org.
Talking health-monitoring devices
You can buy a number of useful medical tools, such as the
Lo-Dose Count-A-Dose tactile insulin syringe-filling tool, a talking blood
pressure cuff, a talking digital thermometer, and a talking prescription bottle
reader. Prices are reasonable, and in
some cases the lowest anywhere. Enhance your independence and health! Contact
the NFB’s Independence Market at telephone: (410) 659-9314 (select option 4
from the voice menu); Web site: www.nfb.org.
Low Vision Tools
The NFB Independence Market has many useful assistance aids
for low vision individuals. If you need assorted magnifiers, low-vision
felt-tip pens or large-print items such as address books, calendars or check
registers, you will find them among the useful items in the market. Contact the
NFB’s Independence Market at telephone: (410) 659-9314 (select option 4 from
the voice menu); Web site: www.nfb.org.
Full Service Diabetes Supplier
Access Diabetic Supply promises free glucose monitors,
delivery, and in-home training in the use of blood glucose testing devices. Your private insurance is welcome, and they
accept Medicare, too. Check them out online:
www.diabeticsupply.com or call: (800) 285-1430.
Read the Paper by PHONE with NFB-NEWSLINE®
NFB-NEWSLINE® makes daily newspapers and magazines
accessible by phone. Users listen to the news via synthesized voice. No
computer is needed and it is FREE! New feature: national television listings!
To subscribe contact: NFB-NEWSLINE®, 1800 Johnson Street, Baltimore, MD 21230;
telephone: (866) 504-7300.
Diabetes Supplies
American Diabetic Supply, Inc., will ship your diabetes
supplies to your door. They handle all
insurance claims and provide free delivery.
Those with Medicare and/or private insurance (no HMOs) may receive
supplies at no further cost. For
information, contact: American Diabetic
Supply, Inc., telephone: (800) 453-9033, ext. 611; Web site:
www.americandiabeticsupply.com.
Flying With Insulin or Supplies?
Terrorist activity has caused the United States
Transportation Safety Authority, the TSA, to limit carry-ons. What about insulin, glucose tablets, and
other diabetic supplies?
Passengers may bring insulin on board as long as the
prescription label matches the name of the traveler. For more details go to:
www.tsa.gov.
NOTE: www.diabetesandtravel.com also contains useful advice
for diabetic travelers, for example, how to manage time zone changes.
Support for Self-Management—and a Free Meter
Liberty Medical can help Medicare patients with low-cost
supplies delivered to your door. They also offer healthcare professionals on
the telephone and reminders when you may need refills. Call (800) 786-9835 to
ask about your free meter.
Attention Voice Readers!
We will be sending out a survey to randomly-selected Voice
readers soon. If you get one, please fill it out and mail it back. Tell us what
you want to read about! Tell what you think would make Voice of the Diabetic
more useful to you!
Your opinions are vital to our continued success.
Thank you!
voice of the
diabetic
SUBSCRIPTION FORM
Order Your Free Subscription TODAY!
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free subscription to Voice of the Diabetic in:
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PRINT ___4-TRACK TAPE ___ EMAIL
___ SURE, I can
distribute #_______ copies of Voice.
___ YES, I would like
information about becoming a member of the Diabetes Action Network of National
Federation of the Blind. My $10 annual
dues are enclosed.
Name: ______________________________________________
Address:_______________________________________________________________
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Voice Subscriptions are offered free of charge, but
cost the NFB about $20 per year. Your charitable donations are most welcome. Thank you.
Return to: Voice
of the Diabetic
1800 Johnson Street, Baltimore, MD 21230
phone: (410) 296-7760
email: subscribe@diabetes.nfb.org
www.nfb.org/voice
www.nfb.org/voice
March for Independence
Join our Voice of the Diabetic Team, as we March for
Independence this summer!
Voice readers, writers, staff and supporters will
come together to participate in the National Federation of the Blind’s March
for Independence, in Atlanta, Georgia, on July 3, 2007 at sunrise. Can’t be there with us in Atlanta? Join us in spirit by sponsoring a marcher. To learn more, call the NFB at (410)
659-9314, extension 2406, or visit us on the Web at
www.marchforindependence.org.
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